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Help with new XLH support website

LucyBanwell Message
10 Jan 2017, 05:18 PM

Hi there I am a journalist working on a new UK-based support website for people with XLH (X-linked hypophosphatemia – a form of rickets). I am looking for case studies for the website. People who would be happy to share their experience of living with the disease in order to help other sufferers. There is a fee involved to cover your time. Please do get in touch if you have XLH or have a family member with the condition. NB this is a time sensitive request posted on 10 January 2017. Please email me at All the best Lucy Banwell, Freelance Journalist