Hi, I live on the Gold Coast in Australia and have been trying for over a year to find out why I am expereincing a lot of numbness and tingling in my feet ,legs, arms,and hands. This happens just when I rest my hand on my leg for only a few minutes as an example. I have been on IVIG for 2 years and have not had an major episode in those 2 years and it has helped alot.But this numbness is affecting me a lot ,sleeping is an issue because my limbs go numb and it makes it very hard to sleep, has anyone any suggestions.Cheers Katarina

Hi Katarina, Whooah! What you describe can have so many causes, some of them associated with the condition, some could be associated with treatment, and most are totally unassociated. Out of interest in Australia, IVIG is approved for use in forms of peripheral neuropathy as a treatment. You really need to sort this through with your physicians. John

Thanks John , I have tried asking many Drs at 2 Hospitals but no one seems to be very interested in finding the cause or how to manage the symptoms. I was hoping someone may have the same problem as this all started after many serious attacks .I was switched to privigen earlier this year and my body is still getting use to it .I am at a loss and it is making life a bit difficult and I am afraid of it getting worse.

Hello Katarina You can get me on john.m.carson@bigpond.com