Are you all patients who have/had askin tumor?

I have had Askin's Tumor 3x. You?

I also had it 3 times, my last therapy is just 2 months ago.

Interesting. Where was it and what kind of treatments did you have? Are you in the US?

First time, 5 years back, a large tumor in left thorax. Chemo, surgery and again chemo. 3 years ago, right long, multiple tumors, surgery and heavy radiation of both the longs. A couple months ago, both longs and 2 tumors in the left hip. Very intensive chemo and radiation in the hip. Last check up, no tumors found, hoping it will stay like this in the future. I live in Belgium, Europe. Treated in UZ Leuven

Congrats on being 'clear' right now! As I'm sure it has been with you, it's definitely been a long, hard road for me. I'll keep you in my prayers. Feel free to check out my blog too: www.obsessedwithlife.com Rachel