Good Afternoon! my daughter was also diagnosed with 4q21 deletion syndrome in December 2017. i would love to communicate with you as i have never met anyone with this condition as it is so rare! when she was diagnosed we were told she made #10 in the world to have been diagnosed with such a rare disorder! i would love to compare stories. you can contact me personally as well at firstname.lastname@example.org
I am also very sorry of the passing your son.
I hope you reach out to me as i would like to get more education and resources if you have any and whatever i have to share i will do the same!
Thank you and take care!
Kayla (Rhode Island)