Dear colleagues, I'm searching for a doctor or a place for my son who has the MWS Any recommendations ?

I went to Dr J Hausmann at the Auto Inflammatory Clinic at Beth Israel Deaconess Medical Center in Boston.

New to this board and I see this post is over a year ago but did you get any help for your son? I wasn't diagnosed with MWS until I was 27 but there is help out there! I see Dr. Lawrence Schwartz in Virginia at MCV VCU