Hello! I am new to this page, and our son is 11 months old and just diagnosed with MPPH. I was just curious to see if there were any updates as to how everyone's child is doing. None of our doctors can really tell us what to expect as far as his development, so I just wanted to see if anyone had any insight!

Hi - I'm sorry to hear about your son's diagnosis. My daughter is 18 mos and has MPPH. There is a Facebook group if you're interested in joining https://m.facebook.com/profile.php?id=459569770779913&tsid=0.9593255908694118&source=typeahead Good luck! Sarah

Hello, my name is Amandine and i live in Normandy in France. I've a little boy who has mpph syndrom. His name is Basile and he is 13 month. He doesn't sit alone and he doesn't speak. In my country, there is nothing about this syndrom It's a very very rare desease. I want to speak with people who have child like my son with this syndrom. I'm sorry for my english I don't speak very well. If you are ok I want to enter in your group on Facebook please. Thank you