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alanawood Message
29 May 2016, 10:47 PM

Hello! I am new to this page, and our son is 11 months old and just diagnosed with MPPH. I was just curious to see if there were any updates as to how everyone's child is doing. None of our doctors can really tell us what to expect as far as his development, so I just wanted to see if anyone had any insight!
sarahwinsome Message
30 May 2016, 11:08 AM

Hi - I'm sorry to hear about your son's diagnosis. My daughter is 18 mos and has MPPH. There is a Facebook group if you're interested in joining Good luck! Sarah
amandine Message
5 Feb 2017, 09:38 AM

Hello, my name is Amandine and i live in Normandy in France. I've a little boy who has mpph syndrom. His name is Basile and he is 13 month. He doesn't sit alone and he doesn't speak. In my country, there is nothing about this syndrom It's a very very rare desease. I want to speak with people who have child like my son with this syndrom. I'm sorry for my english I don't speak very well. If you are ok I want to enter in your group on Facebook please. Thank you