I just started a blog so I can connect with others who have Best Disease. You can find it at www.mybestmateblog.wordpress.com
I'm planning to add audio posts for those who have reduced sight.
Hope to see you there,
I rad your blog. It makes me feel less alone:) I was diagnosed about 5 years ago and have a hard time to xplaining to others what I can see and not see. It is nice that someone out there has an understanding of the nuances of bests. Thank you for sharing.