I'm here trying to find information on this because my parents are both carriers. My sister, younger, is a carrier, I had four brothers born afflicted, and I'm not a carrier.
I was born in '85, my parent's first baby without Hurler's. They raised my brothers, Michael and Nicholas, but left the two other boys at the hospital.
It seems as though the life expectancy has greatly improved, Michael was 6 when he passed away, and Nicholas wasn't yet 2. Was it common for parents to leave their children? My parents won't talk about any of it anymore. I'm sure it's a painful topic. I just wish I could understand more, I guess.