Hi everyone. I am Tammy. I live in Delaware. I found out I have this after having my MRI's reviewed by an AA doctor. He is world renowned, perhaps you have heard of him, Dr. Forest Tennant. I am looking for a specialist closer so I can get an 'official' diagnosis. It really didn't surprise me because of my symptoms and talking to others on a pain forum I go to with AA. I have a wonderful pain management doctor here who is so kind and doesn't treat you like your'e an opioid seeker. I haven't seen him since I got this information from doctor Tennant. I'm praying he knows what it is. I also have syringomyelia, neuropathy and rheumatoid arthritis. I have been denied by SSDI twice, which is ridiculous. i hope to connect with those who understand and possible receive treatments. Thanks for reading. Have a pain free as possible day.