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Beat66 Message
22 Mar 2016, 06:16 AM

Hi everyone. My name is Beat, I am from Switzerland and I am suffering from Arachnoiditis. There are many uncertainties about this disease and especialy here in Europe, it is an unknown. I am hoping to connect with patients or relatives of patients to explore the possibilities of treatment and more. Looking forward to get connected.
Millzy Message
5 Sep 2016, 12:38 AM

Hi everyone. I am Tammy. I live in Delaware. I found out I have this after having my MRI's reviewed by an AA doctor. He is world renowned, perhaps you have heard of him, Dr. Forest Tennant. I am looking for a specialist closer so I can get an 'official' diagnosis. It really didn't surprise me because of my symptoms and talking to others on a pain forum I go to with AA. I have a wonderful pain management doctor here who is so kind and doesn't treat you like your'e an opioid seeker. I haven't seen him since I got this information from doctor Tennant. I'm praying he knows what it is. I also have syringomyelia, neuropathy and rheumatoid arthritis. I have been denied by SSDI twice, which is ridiculous. i hope to connect with those who understand and possible receive treatments. Thanks for reading. Have a pain free as possible day.