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all articles on SCLS on Rare Share??

Hiltjo Message
31 Jan 2016, 01:53 PM

Dear Arturo, Last week I did some new investigation on literature on the topic of SCLS, and found out that at least 14 articles were published on SCLS in 2015!! In relation to some years ago, it is a vastly increasing amount. Not all of them are containing very much new information, but all pieces together are worth to notice. Could this site possibly become a spot to bundle all of them, and to renew it permanently as a database on SCLS? So any doctor in the world would have an instant overview~? Just an idea. Hiltjo
Jcarson Message
1 Feb 2016, 06:02 AM

Great Hiltjo! Please post/send me a link to as many as possible? John
Hiltjo Message
1 Feb 2016, 08:26 AM

Dear John Please send an e-mail (profile). I will return you an overvieuw with links. Hiltjo
Josephite Message
1 Feb 2016, 06:31 PM

Hello Hiltjo. I would also be interested in the overview/links and have also sent you an email (if you don't mind). IVIG doesn't work for my husband, and having the latest articles would be of interest to me. Thank you.
Jcarson Message
1 Feb 2016, 08:57 PM

Hello Hiltjo, john.m.carson@bigpond.com I prepared a poster presentation for a scientific conference, but it is not peer reviewed.
aporzeca Message
2 Feb 2016, 12:46 AM

Hiltjo and others, I have put abstracts and links for the articles I consider most important in the Disorder Resources section, including 2 of the ones published during 2015. If you would like to nominate other articles for such status, send me an email and let me know. This site cannot possibly "become a spot to bundle all" articles on SCLS for two reasons: (1) We cannot upload and make the articles themselves available, and that's generally true of all public sites because of the obvious violations of copyrights that doing so would entail; and (2) I don't think we will do any patient, caregiver or medical practitioner a favor by listing here indiscriminately the 171 articles which according to PubMed make mention of "systemic capillary leak syndrome." Anybody wishing to see any and all of these 171 articles (titles plus abstracts, when available), please visit http://www.ncbi.nlm.nih.gov/pubmed/ and search to your heart's content by whatever criteria you wish -- myocardial aspects being one, of course, of which there are 35 articles, including the ones Hiltjo referenced in his "Cardiac MRI" Discussion Forum entry.