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Porphyria Expert

lyndawillis Message
11 Feb 2009, 04:23 PM

There is a pediatric hematologist in the Washington DC area that has a solid background in treating porphyria. Her name is Dr. Eva Perdahl. She trained in Sweden where porphyria is much more common. She can be contacted through Children's Hospital in the District of Columbia. I highly recommend her. It took almost 3 years to diagnose my daughter. We all know the story. We now have a treatment regime and a plan.