Hi! I am an adult living with PK deficiency. If you are looking to connect with other patients and families living with this rare blood disorder please join our Facebook group. https://www.facebook.com/groups/50217858779/ Also, if you are looking for more information about living with PK Deficiency, please visit the website created by 5 adults who have been living with PKD. http://pyruvatekinasedeficiency.com/ You will find both of these resources to be very helpful! :)