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Recurrent stones, post transplant

valgraham Message
13 Nov 2015, 10:58 PM

My son, FJ, is now on dialysis, but is hoping to have a transplant. The doctors won't put him on the transplant list, until they have removed his kidney stones, as they don't want a risk of infection post transplant. I understand this, but I know that recurring stones is always a problem with Dents. Does anyone know if you stop forming stones after a transplant? And if you do continue doing so, isn't there always a risk of infection if problems occurred with the stones? Thanks in advance.
bleujeanne Message
13 Nov 2015, 11:25 PM

I unfortunately can't answer your questions, but I do have one for you.How old is FJ?
valgraham Message
14 Nov 2015, 08:54 AM

He is 24. (I know he's an adult, so I probably shouldn't be asking these things on his behalf, but as a parent you never stop worrying!)
bleujeanne Message
14 Nov 2015, 12:37 PM

I have an almost 30 year old starting the transplant process, and I have a lot of questions too. Our sons are adults, but we're still caring parents. I'll ask my son to ask his nephrologist your question, and you might want to do the same.
minu Message
16 Nov 2015, 12:49 AM

Hi valgraham I also am still after my 23 year old son and doctors, sometimes pursuing things on his behalf, even though he works in the nephrology field. As you said, as parents we never stop worrying. Anyway, I asked your question to my older cousin and her son, who had a transplant from her in his early 20s, about our sons' age. He did have stones before transplant but has not had any after the transplant, which was a long time ago, 20 years ago. So the new kidney in his case definitely stopped the stone production. My own son has never passed a stone although ultrasounds of his kidneys do show at least one 'floating' stone. We think the reason he has never had problems with stones is that he has been taking potassium citrate since the age of three. My husband unfortunately, completely unrelated, had problems with a kidney stone three years ago. He ended up losing a kidney. He is now also followed by a nephrologist and the only thing the doctor prescribed to him to help avoid future stones, was also potassium citrate supplements. Hope this helps.
valgraham Message
16 Nov 2015, 10:02 PM

Thanks you, Minu. That is very helpful and encouraging news. Sorry your husband has had problems too. FJ has always had stones, but fortunately they haven't caused him problems so far. Interestingly, he has never been prescribed or taken potassium citrate.
kjsjd Message
6 Jun 2016, 04:06 PM

HI Val - not been on the site for a while. How is FJ doing? We met in London 2 years ago. My son is now 14 and has been on potassium citrate for several years now. His kidney function is stable and well maintained with no sign of stones as yet. Best wishes. K
valgraham Message
17 Jun 2016, 09:03 PM

Hi K - good to hear from you. Glad your son's kidney function is stable. FJ is doing ok, thanks. Been on dialysis for a year but we're hoping he will get a kidney transplant later this year, fingers crossed!