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Meet-up in Texas

bsc78 Message
1 Nov 2015, 02:20 PM

As a part of ALD Connect, I'm asking for some help: We'd like to get a group of Texas patients and family (and others) to get together to share information and have questions answered by the experts in the disease. Please help me plan by taking this brief survey below. Thank you for your time.
Unsworthj Message
2 Nov 2015, 07:57 PM

Hi bsc78, I went to Survey Monkey and they wanted me to sign up and all of that. I get enough junk e-mail. No offence to you! I am interested in meeting here in Texas! Thanks for trying to organize! My name is John F. Unsworth and I live in Fort Worth TX. Any time of year is fine with me. Any place is OK too, but if I have a vote, obviously it would be for Fort Worth! hahaha If you want to call me, the best # is 817-922-9994. Best e-mail is or through Rare Share. Thanks again for trying to organize a meeting! John
bsc78 Message
2 Nov 2015, 08:21 PM

Glad to hear that you're interested, John. Hope we get some more. Sorry for the hassle. I don't know why Survey Monkey wanted you to sign in; it should have taken you straight to the survey. Would you mind giving it another shot and let me know if there's something wrong with the link? Thanks John!