I´ve got the 4th monthly dosis of Immunglobilins. I still take Theophylin and Terbutalin. Are there any suggestions if I can stop taking them? Since my heavy attack in March I´m healthy. I can walk with o orthoses. I can ride a bicycle and car, have even begun again to play volleybvall - there are sitting volleyball. Slowly I can remember back to prepare myself for work. I thank again the Internet, which made it possible to identify my illness just in time and to find the platform. So I became aware of the Immunglobein. Now I get my immune globin gifts in the dyalyse station of the hospital and meet there the nurses and doctors who cared for me at the stage after the coma. This is for all again an intensive experience.

There is no instruction manual on this, but if Theophylline and Terbutaline (T&T) were not preventing your episodes, and now IVIG is doing so, then it makes sense to stop taking T&T after a few months of overlap. Doctors usually prefer to make one change at a time -- in your case, add IVIG to your treatment -- because that way they can tell if something goes wrong or right what it was that probably caused it. Since nothing has gone wrong, they probably should proceed to remove one or both of these medications. In my case, my doctors and I waited 5 months until ending my treatment with T&T, but I have heard of other patients who didn't wait as long. With the benefit of hindsight, of course, I wish I had stopped taking those terrible medications the next day after getting the first infusion of IVIG.

Hello Liese, The theophyllin caused me immense side effects... So severe as to warrant a monitoring implant! After 4 months of IVIG, I stopped it, ans it took me about a month to settle down. Today, after a year, I went for a 18km bike ride, and had to resuscitate one of our cycle club members. We are the "Too tyred cycle club" John

Thank you for your advices! All the best for you!