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Experiences

heatheratsss Message
10 Feb 2009, 01:52 PM

My husband has been suffering from what his hematologist calls cold agglutin hemolytic anemia for at least 3 years (at first we thought it was repeated bouts of the flu). Does any one have any advice for slowing down recurrences? Any treatment options besides prednisone? Thanks -- Heather
katherinepringle Message
10 Feb 2009, 02:05 PM

Hi Heather, I also suffer from CAD. I have been treated with prednisone also but more recently with Rituximab which is given by infusion. This has successfully kept my haemoglobin at a better level and more stable. It doesn't work for eveyone but definitely worth a try. You have 1 infusion every week for 4 weeks. Other advice is to really keep warm - don't drink cold drinks or food straight from fridge. Let me know if you want to know more. Best wishes, Katherine