Hello, Just to tell you I just been diagnosed with a myeloma and a amylose. I start the chimiothérapie the next week. Doctors think my heart couldn't bear the medecine. I wish you all the best for your future...... Anne Laure.

Anne, I am very sorry to hear this. I wish you the very best during your treatment. Susan

Anne, I wish u the best also! Keep fighting! Linda

Anne, I'm very saddened to hear about your new diagnosis, and I wish you complete success with your treatment regimen. Because many myeloma patients as well as SCLS patients have a monoclonal gammopathy of undetermined significance (MGUS) in their blood, it is important that our doctors be vigilant about our MGUS levels, and that they order the lab test that will measure it at least once a year. Because an increasing level of MGUS may be indicating the onset of multiple myeloma, and as the case with every cancer, it is best to catch it early, monitoring of our MGUS levels should be a routine part of our check-ups. I recommend that everybody in the SCLS community should discuss this matter with their doctors.

Chère Anne-Laure, J'apprends avec compassion que vous développez un myélome. Le traitement de cette prolifération des plasmocytes est complexe et vous avez le soutien de tous les patients de la communauté SCLS. Tenez-nous au courant de la stratégie proposée par vos médecins et de votre réponse au traitement. Meilleures salutations et nous vous entourons de tous nos encouragements. Claude Pfefferlé Dear Anne-Laure, I am learning with compassion you develop a myeloma. The treatment of this proliferation of plasma cells is complex and you have the support of all patients of the SCLS community. Keep us informed about the strategy proposed by your doctors and your response to treatment. Best regards. We wish you sincere encouragement. Claude Pfefferlé

Thank you all, I was Check every 6 months. The last Time was in april and the last one in september . in fact , when I had my appointement the 8th of september my kidneys were well but I coulden't breath very well since the end of august. I was already hospitalzed during 5 days in september and found I have proteines around my heart. I going to be hospitalzed again the whole next week , from 5th to12th october. I will get you some news after my first chimio.... Merci à vous je vais recevoir du velcade avec du melphalan ainsi que des corticoïdes. Les medecins me gardent une semaine pour surveiller mon coeur, je suis suivie à l'hôpital Percy pres de Paris . Bien à vous Anne Laure.

Sending you all my support Anne Laure. I am sorry to hear of your illness and wish you all the best as you go through your treatments. Keep us updated when you are able.

Anne Laure, I send you strength and tenacity! You have coped with years of CLS, why not beat myeloma with another of your French strides! GO GIRL!

Anne I hope for you the best praying God to bless you I am sorry for that but you mast to be mor stronger than it and pray God will stell bihaind you My gritting wishis for you YASER

Bonjour Anne-Laure, Je vous souhaite très chaleureusement que tout aille bien pour cette mise en route du traitement préconisé. L'association du Velcade+Melphalan+Prednisone est le meilleur standard reconnu actuellement pour lutter contre un myélome débutant. Les membres de la communauté vous tiennent les pouces et vous encouragent de tout leur cœur. Meilleures salutations. Claude Pfefferlé Hello Anne-Laure, I wish you most warmly everything goes well for the initiation of the recommended treatment. The combination of Velcade + Melphalan + Prednisone is the best currently recognized standard (gold standard) in the fight against a beginning myeloma. The community members encourage you for the future. Best regards. Claude Pfefferlé

Thank you all for your support. My treatment is velcade, corticoïdes and endoxan because of the amylose on my heart. I had already have my two first chimio and for the moment only had nauséa and i fell tired with weakness Fortunatly my husband is very close to me and give me a very precious help. I am in a good mood and hope the treatment works. Good bless you. Anne Laure.

I hope all goes well for you, be strong.

Thoughts and prayers are with you!