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4q facebook

MRG10810 Message
16 Aug 2015, 12:32 AM

I was hoping someone can explain how i join the group on facebook. Ive tried and nothing happened.
cacr Message
16 Aug 2015, 05:52 AM

Hello, as the Facebook group is closed to the public the administrators have to accept each person individually and sometimes it can take a day or two depending on how busy they are. Don't worry, I am sure that they will add you to the group as soon as they can and you will find it very useful. Everyone is always happy to help with their experience and share a lot of information that can help each 4qtie. I look forward to "meeting" you on the FB group very soon. Best wishes, Katy
spyle2254 Message
20 Sep 2015, 01:57 AM

love the "4qtie"! haven't heard that b4. what's the fb url?
cacr Message
20 Sep 2015, 08:06 AM

Hi, the group is called "4q Deletion" and the url is this: https://www.facebook.com/groups/102813767091/ See you there! K
V8Momma Message
24 Sep 2015, 12:15 AM

Hey K, if you can ask the admin of the Facebook group to check, I've requested to get in the group over a week ago and haven't been added yet. Help!
cacr Message
24 Sep 2015, 09:41 AM

Hi, I have asked and shall let you know. K
cacr Message
25 Sep 2015, 06:33 AM

Update - apparently the Facebook group admin lady is not well at the moment. Someone has told me that if I befriend you on Facebook I should then be able to add you to the group. We could try that if you like. Please let me know your Facebook name and I shall try it later on today. I'm Katy by the way, and my profile picture is a brown and white dog in the countryside! Best wishes, Katy
V8Momma Message
25 Sep 2015, 10:06 AM

Cute doggie! I just sent you a friend request. Thank you for the help!
edenjukebox Message
26 Sep 2015, 09:34 AM

Hi Katy, I have added you too. My name is Amy H-S and my profile pic is me and my little girl in a roundabout xx thank you x
MRG10810 Message
29 Sep 2015, 12:30 PM

Okay ive been added to the one group... Now whats the second one? Anyone know who runs the group?
nraitio Message
14 Feb 2016, 07:08 PM

Hi, I've send a request to join the 4q on Facebook. Havent't got in yet. Does someone know how to join?
vibrei Message
20 May 2016, 10:24 AM

Hi nraito! Have you been accepted to the facebook group yet?
cacr Message
20 May 2016, 11:47 AM

If anyone wants to be added to the 4q deletion FB group I'm happy to help - send me a friend request (Katy Reay, small brown and white dog in my profile picture) then I can add you to the group. Once you are in the group I "unfriend"you but that is because I only use FB to contact my close family - hope no one takes offence! Let me know via here what your FB name and profile pic is, that way I know I'm adding the correct people. Best wishes, Katy
LakeLili Message
21 May 2016, 12:07 AM

Hi Katy, I m sending thru a friend request on fb to be added to to te 4q fb group. Thanks Liane
Silvana Message
21 May 2016, 05:56 AM

Hi, I've been trying to join the group on Facebook. I need help please. I'm from Nicaragua (Central America), my daughter was diagnosed with 4q21-22 deletion syndrome when she was 8 weeks old. She passed away when she was 15 weeks old in a hospital in The United States. I'd like to share her medical history. Thanks! Silvana svarynia@gmail.com
cacr Message
21 May 2016, 06:02 AM

Hi Silvana, Friend me on Facebook and I will try to add you to the group. I'm Katy with a small brown and white dog in my profile picture. Hope to see you! Katy
Silvana Message
21 May 2016, 06:51 AM

Hi Katy, I just added you on FB. Thanks!
Christyb Message
21 May 2016, 09:23 PM

Hi Katy, I have just sent through friend request on FB, could you please also add me to the 4q group. Many thanks, and you have a very cute dog Christy
nraitio Message
11 Jun 2016, 06:46 PM

Hi Vibrei! I've been added to the Facebook group already. Thank you!
Amber097 Message
21 Jun 2016, 12:38 AM

Can someone please add me as well. My name is Amber Morrow
cacr Message
21 Jun 2016, 06:07 AM

Hi Amber, I've added you to the group - see you there! Regards, Katy
huchlee Message
11 Dec 2016, 02:24 PM

Dear all, Could you please add me in the FB group? My name is Cristina Lee. You will find a picture of me and my son Martin. He is 16 years already.
vibrei Message
11 Dec 2016, 06:25 PM

Hi Christina! There are so many people with your name on facebook! Try to add me as a friend and I'll invite you to the facebookgroup. My name is Vibeke Reiten:)
aline Message
26 Dec 2016, 06:29 PM

olá, voce poderia me adicionar ao grupo? aline costa
huchlee Message
26 Dec 2016, 06:34 PM

Hola Aline. cual es tu facebook? Hay varias aline costa.
aline Message
26 Dec 2016, 07:37 PM

https://www.facebook.com/profile.php?id=100011624465153 Bela'rt artes em papel
Tatiana29042510 Message
20 Apr 2024, 12:07 PM

Good afternoon, my name is Tatyana, my son has a deletion of chromosome 4, please help me get into the group on Facebook. I submitted an application, but I was not added to the group. Thank you in advance!
My profile https://www.facebook.com/profile.php?id=100088982920255