Just a friendly reminder to tell all you know affected by ALD--patients, friends, and family--about ALD Connect's Patient Portal. It's still in its early stages of development, but it is already giving the scientific community patient input.
Polling of those who have already signed up with the Patient Portal has caused ALD Connect to change up its agenda to address precise patient-community needs for its Patient Learning Academy in October in Boston, MA.
Give ALD Connect your input. I actually feel like I'm doing something towards progress, and I encourage you too as well.