My son is 29 years old this Sept. When he was born and diagnosed, we had no information on this. His deletion is also somewhere near the 33 band (4q-). He is also autistic. If anyone would like to ask questions, I would be happy to help!

Hi,

I just found out my baby (19 weeks in utero) has 4q 33 terminal deletion.  Doing everything we can to find out more information on this.  Did your son face a lot of medical problems when he was young and does he still deal with them now?  FInding our this information now while I'm still pregnant I don't know what choice to make regarding keeping the baby or terminating because there is just not enough information out there.  

Do you have any more information or insights you can please share with me?  Thank you so much!