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Issues with extreme temperatures

Loribeth82 Message
8 Jun 2015, 05:05 AM

Hello all, Have any of you noticed that your symptoms are exacerbated by extreme hot/cold temperatures? The last couple of years that I lived in Michigan, I had terrible Raynaud's syndrome in the winter, in my feet (toes would be extremely painful, turning red then white, due to limited blood circulation). This was about 3 years after my first AMN symptoms started (but years before being diagnosed). I've been in Oregon for the past 5 years now. MUCH milder winters, and I haven't had any of the Raynaud's issues since. We're toying with the idea of moving back to Michigan, and I'm worried those issues would return if we move back. And not sure if the Raynaud's is connected to the AMN, or just something separate and random. And then also curious about issues others may be having with extreme heat. It is common for people with MS to have exacerbated symptoms in hot weather, and I'm wondering if it makes sense that we with AMN would as well. I do think my symptoms get worse in extreme heat, but kind of wonder if it's all in my head, and just because I'm more fatigued, since hot weather makes everyone feel fatigued! Just curious what others think on the temperature topic. Thanks!
cindil Message
8 Jun 2015, 10:06 AM

We live in MI and my husband has issues with Raynauds in feet and fingers every winter
Unsworthj Message
8 Jun 2015, 03:28 PM

The cold weather is murder on my legs. Much stiffer than normal. It's not Raynauds, but much stiffer and more pain. No problem with hot weather. Come to Texas!
dryder845 Message
14 Jun 2015, 12:00 PM

In extreme cold, I have stiffness in my legs. My son who has AMN also feels the difference in extreme heat or cold.
stevensims Message
17 Jun 2015, 08:30 AM

Hi, I'm worse when it's cold but what's amazing is that when I go on holiday closer to the Equator my symptoms disappear! I've researched and found that uvb rays from the sun produce vitamin d3 and the active form in the bloodstream ameliorates my symptoms! Even my bladder is better! But as soon as I get home within 24 hours I'm struggling again! I've researched the active form of vitamin d has a half life of up to 15 hours! All the best Steve
Loribeth82 Message
18 Jun 2015, 05:11 AM

Thanks everyone! And that's really interesting, stevensims - so I guess we should all move closer to the equator! :) Works for me! I've ramped up my D3 supplementation recently, but not sure yet if it is having any effect.
jolo59 Message
20 Jun 2015, 02:10 PM

It seems that I've always had Raynauds in my hands - living in Central NY doesn't help! two winters ago I began to notice my lower legs & feet would get extremely cold and would feel that way even to the touch! From the knees down to the toes. My feet are either purple or white during this. I've had tests run for circulation and they all come back fine ... I was diagnosed about 10 years ago, I think this "new symptom" is most bothersome as there doesn't seem to be anything that I can do to warm up. We have a heated mattress pad, which is WONDERFUL, but can't stay in bed all day! Putting my legs up has become a necessity for an hour a day. My feet will swell if I don't (another new symptom). I am in a wheelchair now and I do stand throughout the day if I have something to help support that. We'd always loved the seasons here ... may have to consider moving more south! I'm paying particular attention to my symptoms this summer ~ but it's been so rainy, I'm waiting for some consistent warmth!