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Thank you : RareShare/RGI Adrenomyeloneuropathy (AMN/ALD) Podcast

deepask1 Message
7 Jun 2015, 05:35 AM

Dear RareShare AMN/ALD Community Members, We hope you enjoyed the third podcast of our ask the expert series and gained some knowledge to help you in your journey. Thank you so much for participating in our podcast series on: “Living with Adrenomyeloneuropathy (AMN/ALD)-A Clinical & Research Perspective” featuring Dr Weston Miller, MD, Dr Jay R Shapiro, MD and Ms Ann Moser, BS As promised here are the recording links, click here to replay the event 1) Adrenomyeloneuropathy (AMN/ALD ("MP3 Link":http://k003.kiwi6.com/hotlink/htf2j8lz5v/Adrenomyeloneuropathy_AMN_Adrenoleukodystrophy_ALD_Podcast_Series-06_02_2015.mp3, "Direct Link":http://kiwi6.com/file/htf2j8lz5v) , and 2) To enroll in AMN/ALD clinical trials : click "here":https://clinicaltrials.gov/ct2/results?term=Adrenomyeloneuropathy&Search=Search We would love to hear your feed back and please take a moment to fill the Feedback Form: Adrenomyeloneuropathy (AMN/ALD) podcast. We look forward to your participation in our future events and at RareShare Community, Sincerely, Deepa Kushwaha, PhD Program Manager (Scientific) Rare Genomics Institute/RareShare http://raregenomics.org/rareshare/