I am part of some Facebook HE groups and just happened to find this group while doing some reading. I don't have a formal dx but I fit the "diagnostic" criteria with 10 years of elevated TPO (never in range), 10 years of abnormal EEGs showing diffuse slowing, an LP positive for protein (clean catch, no blood), and a lot of the characteristic symptoms of relapsing/remitting HE.
Just wondering if this site is active?! Anyone out there?