Given that this is a rare disease that doesn't garner a ton of attention, how can we raise awareness or assist in securing additional funding for research to find a cure? Anyone have any ideas? Let's do this!

Hi Kat1234 - Millions of dollars has been raised for LGLL specific research, in the last few months via the LGL Leukemia FOUNDATION and UVH and the LGL Leukemia Registry, via a private donor we secured. You can learn more about it under our "Files" section in our CLOSED Facebook Support Group. The OFFICIAL document is uploaded for your convenience. "Your link text":http://www.lglleukemiafoundation.org Kind regards, The LGL Leukemia FOUNDATION