Hi Twiggy17 again I have pulmonaire interstitielle too but it is not very bad with the medications. (When I was admitted to hospital with pneumonia I had bad chest pains and could not lie down at night so was sleeping in an armchair) My medecin did not know what to do for me as he had prescribed many antibiotics that did not help so he sent me to the hospital where they discovered my problem. The specialist told me that there were only 5 other people in the whole of France with the same disease. I must have scaneur and and lung function tests every year. I also have Syndrome Sjogrens (dry eyes and mouth) but it only causes me discomfort from time to time. I also have polymyositis, pains in my arms and legs but not all of the time and get very tired when cleaning the house etc. When they thought that I had Lupus in1991 I had to stay home and could not work for a while but when the medication began to help I was able to go back to work. How are you coping at the moment? I hope that you start your treatment soon and that it works for you. Bises Carol

Hi deaks, I've have some little chest pains when i lie down but not all the time. I had Maternity leaves for 4 months so i will go back to work in 10 days to restart a normal life after all these bad news... If we are only 7 people (+1 with me) in the whole of France with the same desease, the prevalence of 1.5 ( Per 100,000 Population ) in this website is not true ! Thank you Carol for all theses informations, I will give you some news in one month, when i will have the result of my muscular biopsie. Bises. Cécile