Hi there! My son was just recently diagnosed with Mpph via fetal MRI. I just wanted to see how all of your children are progressing. How was the first year? I think we're moving forward with the c-section in 2 1/2 weeks. I'm pretty nervous and not sure what to expect.

Hi, There is a fab page on facebook with lots of info and support. Its under MPPH Syndrome. Let me know if your having trouble accessing it xxxx

Thank you! We were initally diagnosed with just the PMG but the MRI findings came back saying MPPH is probable. Obviously we'll know more when he's here in a few weeks. Thank you for the info. I'm on the PMG FB pages so I'll be sure and look up the MPPH page.