I don't know if your neurologist is very familiar with AMN, but John Fink is in Ann Arbor, Michigan, and an excellent neurologist very knowledgable in axonopathies of the spinal cords and AMN. I also don't know where you live in Michigan, so this may not be feasible. But I think it's important to see doctors familiar with AMN specifically. ALDconnect.org is trying to put together a nationwide network of doctors up-to-date on the latest AMN news and treatments. The website may also be helpful. Wishing the best for your husband.