Dear RareShare LGLL Community Members, We hope you enjoyed the first podcast of our series and gained some knowledge to help you in your journey. Thank you so much for participating in our first podcast series on: “Living with Large Granulocyte Lymphocytic Leukemia (LGLL)-A Clinical & Research Perspective” featuring Dr Thomas P Loughran, MD and Dr Thierry Lamy, MD, PhD As promised here are the recording links, click here to replay the event 1) "LGLL Podcast Link (MP3)":http://k003.kiwi6.com/hotlink/masgooeazb/LGLL_Podcast_Series-02_13_15.mp3, 2) "Podcast Direct Link":http://kiwi6.com/file/masgooeazb and 3) "Research Article : How I Treat LGLL":http://www.bloodjournal.org/content/117/10/2764.long?sso-checked=true We would love to hear your feed back and please take a moment to fill the "Feedback Form: LGLL podcast":http://goo.gl/forms/2n1EUQ0mf2 . We look forward to your participation in our future events and at RareShare Community,

Thank you, Deepa, RGI and RS Team, Dr. Loughran and Dr. Lamy, I would like to thank you your entire team for all of their tremendous efforts. *This is truly ground breaking and it is happening for the very FIRST time in LGLL history!* We are all working "together" to help shape the LGLL landscape today and for the future. It really is amazing and so rewarding. Great job to all...Bravo! Looking forward to the future series of podcasts. Kindest regards, Tina Cancio LGLL Patient | "LGL Leukemia FOUDNATION":http//www.lglleukemiafoundation.org

Thank you for helping to organize this program.

I found it interesting. Does anyone else get canker sores as a symptom?

Yes constantly. It seems that since the LGL diagnosis I've become allergic to preservatives and many foods. I get canker sores and my tongue swells up. I'm always afraid to eat too much of anything because I don't know how bad it will get. The allergist calls it oral alkergy syndrome. Again- an autoimmune reaction.