I was just diagnosed with Adrenomyeloneuropathy a few weeks ago. I am a 32-year-old female, and have had similar experiences. I have symptoms of neuropathy, ataxia, leg weakness and incontinence that have been progressing over the past decade.
My symptoms were apparent enough that I first sought medical evaluation 7 years ago (age 25), and that was prompted primarily by balance issues and some loss of sensation in my lower legs/feet. Testing confirmed, back then, that I had reduced nerve conduction. But there were subtle indicators in the few years before that. In particular, if I drank alcohol, there was something "off." After just a drink or two my coordination was impacted as though I had had 5-6 drinks, meaning my gait was very wobbly, I was prone to falling over, etc.
What characteristics have you experienced so far?