Well if you have managed to ignore TAM for 6 years, you have done exceptionally well.
As you say, calcium antagonists are the big ones, particularly verapamil. In the earlier years gentle progressive exercise can help as it does for quite a range of such maladies. Hydrotherapy and physiotherapy can also be helpful. Gentle stretching, possibly after heating muscles, can be necessary to counteract inevitable shortening of over-exercised muscles. There is a range of dietary supplements, mentioned by some, but little evidence of continuing benefit. People have tried a huge number of analgesics.
Apart from those, we just have to adjust our lives to advancing disability with the help of suitable aids. And of course we hope for some advance in treatment from DNA research. Have you contributed a DNA sample to the research at IGBMC?
I guess that none of this is new to you. Anyone else have any ideas?