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new to the community

michjen Message
24 Oct 2014, 07:45 PM

Hello, I am mother to a 5 year old boy who was diagnosed with ADEM 2 months ago. I joined Rareshare to connect with other caregivers and individuals affected by this rare disorder. My son is currently doing inpatient rehab, and has gradually regained strength in his left arm and leg. We are hoping to have him back home again in mid-November. We have a follow-up appointment with his neurologist on Monday. Does anyone have any suggestions on what to ask during our follow-up visit?