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Follow up announcement for possible webinar

deepask1 Message
24 Oct 2014, 03:25 PM

Hello everyone, Thank you so much for your responses! This is Deepa, I am Project Manager for Scientific Programs at RGI/RareShare leadership team and I will be coordinating the webinar/podcast sessions. Due to significant interest with in the antisynthetase community, we welcome suggestions of Scientist/Researchers & Clinicians if you have and you would like to see participate in possible podcast/webinar sessions, please share information. We are also working to identify individual experts in antisynthetase syndrome for webinar/podcast session. We are aiming to coordinate in the next few months on their availability and willingness to participate. We will try our best to accommodate different time zones/scheduling needs for all of you. Please look out this space for associated information. Regards, RareShare Team
sickdude Message
24 Oct 2014, 03:45 PM

Hello, Dr Frederick Miller at the NIH in Bethesda would be a great place to start and I'm sure he could direct you towards the other leading researchers of antisynthetase syndrome. Also Dr. Lisa Christopher-Stine and others at the Myositis Center at Johns Hopkins. Also Dr. Christina Charles-Schoeman at UCLA. You should also contact The Myositis Association, they can provide you with all the information you need.