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Possible webinar for Chromosome 4q Deletion Syndrome

deepask1 Message
17 Oct 2014, 12:09 PM

We are interested in hosting webinars and Q&A sessions about your disease if there is enough interest. Please express your interest by responding to the thread, based on your response we will provide more details about the topics, date, experts, and other associated information. For your reference, here are a few examples of sessions sponsored by the Rare Genomics Institute: 1. DISEASE: Ataxia * TECHNOLOGY: Genome sequencing * EXPERT GUESTS: Drs. Lyon Gholson (Cold Spring Harbor), Mishra Angrist (Duke), Susan Perlman (UCLA) * LINK TO PODCAST: "http://kiwi6.com/file/8jb6y9mt6v":http://kiwi6.com/file/8jb6y9mt6v, "http://kiwi6.com/file/b3025ownyo":http://kiwi6.com/file/b3025ownyo 2. DISEASE: Trigeminal neuralgia * TECHNOLOGY OVERVIEW: C. Elegans * EXPERT GUESTS: Drs. Andrew Golden (NIH), William Cheshire (Mayo Clinic) * LINK TO PODCAST: "http://kiwi6.com/file/xoz74rv84k":http://kiwi6.com/file/xoz74rv84k 3. DISEASE: Transverse Myelitis * TECHNOLOGY OVERVIEW: Mouse as model organism * EXPERT GUESTS: Dr. Benjamin Greenberg (UT Southwestern), Cat Lutz (Jackson Laboratory) * LINK TO PODCAST: "http://kiwi6.com/file/f08t954g83":http://kiwi6.com/file/f08t954g83 If you are interested, please respond to this particular thread. When we have sufficient response, we will start organizing a session for this community. Regards, RareShare Team
spyle2254 Message
18 Oct 2014, 04:08 AM

I would be interested
sunlover1978 Message
18 Oct 2014, 09:20 AM

I am interested.
Shannon9 Message
18 Oct 2014, 12:02 PM

I am interested
Kirsty Message
18 Oct 2014, 06:22 PM

I am interested
difi51 Message
19 Oct 2014, 03:01 AM

I am most definitely interested. Thank you.
sherryjolene Message
19 Oct 2014, 04:29 AM

I am interested.
Jtag Message
19 Oct 2014, 02:52 PM

Very interested
Savana Message
24 Oct 2014, 09:43 PM

Interested.
Littlemumma Message
25 Oct 2014, 04:42 AM

Interested
vibrei Message
9 Jan 2015, 11:14 PM

Interested!
debby Message
10 Jan 2015, 08:21 AM

Interested
szvaig Message
11 Jan 2015, 07:50 PM

I am very interested
LakeLili Message
25 May 2015, 08:58 PM

I would also be interested. What is the status on the development of this webinar.
deepask1 Message
26 May 2015, 01:39 PM

We have finalized the experts, it will be in Mid July/August. Thanks for your interest. I will be following with more detailed announcement soon.
LakeLili Message
26 May 2015, 09:15 PM

Terrific! Thanks for letting us know. Look forward to it.
melaniegray1986 Message
7 Jul 2015, 10:51 PM

Is this still happening? Or am I too late? I am interested.
deepask1 Message
7 Jul 2015, 10:54 PM

Yes, indeed, the date is decided in August, detailed announcements coming next week.
vibrei Message
9 Aug 2015, 10:03 AM

If I understand correctly, the seminar is not online on the web but only available by phone? Will it be posted online somewhere later? It will be too expencive for me to follow the seminar by phone!
MRG10810 Message
9 Aug 2015, 05:09 PM

I as well would be very interested!
Kirsty Message
10 Aug 2015, 10:23 AM

Has anyone actually been able to log on to this podcast?
LakeLili Message
10 Aug 2015, 11:42 AM

As far as I know its dial-in only. It doesn't start until 11am EDT. If they are providing an on-line option could some one post the details... Thanks.