We are interested in hosting webinars and Q&A sessions about your disease if there is enough interest. Please express your interest by responding to the thread, based on your response we will provide more details about the topics, date, experts, and other associated information. For your reference, here are a few examples of sessions sponsored by the Rare Genomics Institute: 1. DISEASE: Ataxia * TECHNOLOGY: Genome sequencing * EXPERT GUESTS: Drs. Lyon Gholson (Cold Spring Harbor), Mishra Angrist (Duke), Susan Perlman (UCLA) * LINK TO PODCAST: "http://kiwi6.com/file/8jb6y9mt6v":http://kiwi6.com/file/8jb6y9mt6v, "http://kiwi6.com/file/b3025ownyo":http://kiwi6.com/file/b3025ownyo 2. DISEASE: Trigeminal neuralgia * TECHNOLOGY OVERVIEW: C. Elegans * EXPERT GUESTS: Drs. Andrew Golden (NIH), William Cheshire (Mayo Clinic) * LINK TO PODCAST: "http://kiwi6.com/file/xoz74rv84k":http://kiwi6.com/file/xoz74rv84k 3. DISEASE: Transverse Myelitis * TECHNOLOGY OVERVIEW: Mouse as model organism * EXPERT GUESTS: Dr. Benjamin Greenberg (UT Southwestern), Cat Lutz (Jackson Laboratory) * LINK TO PODCAST: "http://kiwi6.com/file/f08t954g83":http://kiwi6.com/file/f08t954g83 If you are interested, please respond to this particular thread. When we have sufficient response, we will start organizing a session for this community. Regards, RareShare Team

HI I am very interested have had the disease for 5 years.Thankyou

I have a family member with the disease, diagnosed 4 years ago. Very interested in the webinar.

I have LGLL and have been officially diagnosed for 2 years. I would be interested in participating in a webinar.

I am interested in LGLL webinar.

I was diagnosed with T-LGLL this year and am very interested in a webinar about this disease

Yes, I am very interested, as I am an LGLL patient, and also the Founder of the *LGL Leukemia FOUNDATION, Inc*. - non-profit organization. Website | "Your link text":http://www.LGLLeukemiaFoundation.Org) Facebook | LGL Leukemia Foundation Twitter | LGL Leukemia Foundation Thank you! Tina Cancio

Yes! Interested!

I'm interested!

Yes, interested.

Yes, very interested. Was officially diagnosed 6 years ago.

Yes, I am interested,

Is this webinar going to happen?

Hi whynotabc1, Off course it is going to happen, we are still analyzing number of responses and people who are interested in webinar. A follow up information will be posted based on the interest. In the meantime, you are welcome to suggest any recommendations and information of clinicians/scientist you would like to hear. Best Regards, RareShare Team

yes I am interested

My daughter was diagnosised when she was 19 six years ago am very very interested

Hi I am interested in a "webinar." Thanks Tina S