Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Possible webinar for Adrenomyeloneuropathy

deepask1 Message
15 Oct 2014, 02:34 PM

We are interested in hosting webinars and Q&A sessions about your disease if there is enough interest. Please express your interest by responding to the thread, based on your response we will provide more details about the topics, date, experts, and other associated information. For your reference, here are a few examples of sessions sponsored by the Rare Genomics Institute: 1. DISEASE: Ataxia * TECHNOLOGY: Genome sequencing * EXPERT GUESTS: Drs. Lyon Gholson (Cold Spring Harbor), Mishra Angrist (Duke), Susan Perlman (UCLA) * LINK TO PODCAST: "":, "": 2. DISEASE: Trigeminal neuralgia * TECHNOLOGY OVERVIEW: C. Elegans * EXPERT GUESTS: Drs. Andrew Golden (NIH), William Cheshire (Mayo Clinic) * LINK TO PODCAST: "": 3. DISEASE: Transverse Myelitis * TECHNOLOGY OVERVIEW: Mouse as model organism * EXPERT GUESTS: Dr. Benjamin Greenberg (UT Southwestern), Cat Lutz (Jackson Laboratory) * LINK TO PODCAST: "": If you are interested, please respond to this particular thread. When we have sufficient response, we will start organizing a session for this community. Regards, RareShare Team
memphiscat1998 Message
16 Oct 2014, 06:02 AM

This would be great.
Unsworthj Message
16 Oct 2014, 02:28 PM

Great idea! I would definitely participate! John Unsworth
Anthony90 Message
17 Oct 2014, 04:09 AM

count me in! I don't know if there will be very many responses with such a rare condition...