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emilysorenson Message
30 Sep 2014, 03:02 PM

Hello community! Alex's last two 24-hr urine tests from Litholink have come back with high oxalates in his urine. 60mg in March and then 110 mgs recently. Very high oxaltes is often indicative of primary hyperoxaluria. Just was wondering if this is a symptom of Dents or an isolated case. Thank you, Emily
LadaBL Message
21 Jan 2015, 09:39 PM

High oxalates are not common for Dent. However, sometimes even levels this high can come from dietary sources, but you could have him tested for primary hyperoxaluria. It is very important to minimize oxalate in diet. Did you review it with the nephrologist or a nutritionist? High doses of vitamin C can also give you high oxalate, make sure he is not getting that. We also have a center for primary hyperoxaluria if you would need genetic testing. Where did you get with this so far? Lada
hamilt1 Message
21 Jan 2015, 09:52 PM

Do you recommend a low oxalate diet in Dent's even if the oxalate level is normal?
LadaBL Message
21 Jan 2015, 10:30 PM

No, restriction is advised only if oxalate is elevated. The elevation could also be a result of calcium restriction in diet. Calcium should not be restricted. If less calcium is eaten, more oxalate is absorbed. My view is that possibly Dent patients do not get enough phosphorus, that is why I am studying phsophate regulating hormones for Dent in my FGF Study for Dent disease. We will hopefully learn something from it. I have just looked up our registry data. Few patients have oxalates in 50-60 range. Not most common but possible. Lada