Hi, My name is Martin Foster, and I'm working on a new medical mystery docu-series called 'Diagnosis Unknown'. It's being produced by GRB Entertainment, producers of 'Intervention' and 'Untold Stories of the ER' and will air on a new, rebranded Discovery channel in spring 2015. Each episode will contain two stories, and each story will be told from the viewpoint of the patient, a family member/friend, who supported the patient throughout, and the doctor who was able to finally diagnose the symptoms. Recreations of key scenes will be done with actors. I'm reaching out as we'd love to include a story about Systemic Capillary Leak Syndrome. Ideally, we're looking for someone from the US or Canada who had difficulty finding the right diagnosis, but has since managed to move forward with their life. The time commitment will be minimal – a few phone calls and an interview done locally. Each patient story will be handled in a unique way that will minimize time but allow us to fully explore their journey. If anyone is interested in talking to me, I'm more than happy to answer any questions and can be contacted via my email, martin@mysticartpictures.net. Best, Martin

Hi all, How exciting about a tv show including scls. Along with the publishing of the article on ivig these are wonderful accomplishments as far as spreading the news. I am allen's sister and have not signed on for about a year and a half as I have had a little struggle with aml leukemia followed by sepsis due to the treatment, life on a ventilator and near death, becoming crippled for 3 months and living in a rehab center and finally having a stem cell transplant. I am in remission and doing ok now and I must say that during my treatments I thought of all of you and what you had been through and it gave me strength. It was a lot easier being a cheerleader! Allen, who has scls and has been well for almost 10 years since his first episode, and I kid around about who has it worse. Neither is great but the biggest difference is awareness by doctors, nurses, hospitals as well as the general public. We have come along way with scls thanks to arturo, walt and so many of you and I am happy to see everyone doing pretty good. Hope someone will step up and do this show to keep the ball rolling! Maybe someone who takes ivig as that has made a huge difference in survival rates. Allen has not had to go to ivig yet and has had infrequent episodes so he is a rarity and maybe not the best example. Looking forward to seeing this on tv!!