Hi All Was talking to my Specialist yesterday and he mentioned a potential link between SCLS and Reflex Sympathetic Dystrophy (Complex Regional Pain Syndrome). After a stress fracture in my right foot i suffered for years with pain that took a lot to control. This complaint can occur with minor breaks in hands, legs and feet and seems to be a nerve problem. Mine took a nuclear bone scan to diagnose. See below link if anyone's interested. My pain oddly enough has vanished since SCLS was diagnosed. Interested to see if anyone has had similar experiences and if any connection. http://en.wikipedia.org/wiki/Complex_regional_pain_syndrome Kind Regards Andrew Davis

no, but the only bones I"ve broken are a toe and a finger, plus a cracked tailbone. No big breaks. Just wanted to reply so you know people are reading your message :-)

Very interesting reading. I suffer from continual nerve pain and reading this confirms my doctor is on to it with medications this far. Interesting reading ivig is also mentioned here and that is certainly something that I will be investigating further. Thanks for sharing this. Ruth NZ