I just produced this 16-minute video to highlight a potential Physical Therapy regimen for AMN patients. It starts with a 4-minute animated video to explain the science, and then shows my exercise routine, including Pilates. https://www.youtube.com/watch?v=VnAoWJ5_WWs

Brittany, Thank you! I especially appreciated the Animated Video...it put into words perfectly everything I have been dealing with most recently...I have been having more difficulty with balance and speed lately caused by increased spasticity and pain...I can be really strong one day and completely exhaust my personal resources which cause me to "crash" the next (I am coming to realize it at this point, so I am able to create a new plan of action) It was great to be able to show it to my husband...I have run circles around him most of our married life, I am very high strung and hard working...i've had problems since the beginning of our relationship but have plateaued for long periods without decline.. This past Saturday evening before I saw this video we had been out on date night, we were walking into the mall holding hands and he was almost pulling me along, He looked puzzled when I told him I couldn't go any faster (remember I "ran circles around him") It was great that he could see a visual explanation of what I have tried to explain to him. He is amazing and patient and has begged me to "slowdown" for years...now sometimes I have no choice. Thank you for sharing your talents! Jeanine Snyder

Dear Jeanine Yes, it is the puzzling and scary thing about our disease that we can feel pretty good one day, and completely "petered out" the next, sometimes with no particular pattern or explanation. I will feel strong after a tough day and a short night, and will feel completely conked out after an easy day and restful night. It is essential, however, to keep exercising, and maintain stamina and core strength. The worst one can do is to resign oneself to the wheelchair and immobility.

I just checked, and your video is not available.

I got the video.

I saw it on Facebook 3-4 days ago. Excellent!

I found it. Thank you

It is a GREAT video