-Let's see I only can grab at things in order to pickup objects to receive them by hand (that are smaller than my hand), reason being my wrist won't rotate upward due to my lack of arm mobility. Example of this is holding my hand palm up to collect money from a cashier/drive thru. Having someone place something in my hands is impossiable. So grabbing is the only thing I can do.
-Other problems I have are... can't touch my shoulders or back with my hands, can't bowl correctly (only granny style), can barely play a guitar while standing up (can play awesomely while laying flat on my lap or a table). Throwing a ball over hand and batting at a ball can be difficult but throwing a ball under hand is impossiable.
- basically anything that requires to rotate your arm and hands' palms completely down or up is hard to do or impossible at times.
-I recently found out that this is genetic for me because my grandmother told me that my great grandmother had problems with similar issues but I was told by my grandmother that my great grand mother complained about her wrists and how she could not do certain things, so I basically have come to the conclusion that I probably have the same thing that she had.
I have searched the web regarding this and was only able to find information on a medical level but was not able to find anything on a personal level on one's experience in having this and what I have is rare but I don't think it should be called a disease it makes it sound bad. So hopefully this is helpful for anybody wanting a personal view on this (I've seen on the internet people asking about this and what to expect regarding their young children but no answers or rarely any comments).
Well here it is from someone who has it (and did not have surgery to remedied it) my it is Congenital Radio-ulnar Synopsis. My arms are sideways which I can not rotate them upward what so ever but with limitations to a certain extent can rotate my arms down.