Hi Everyone,
I belong to a few closed Facebook groups primarily regarding the Myositis part of our disease and one of the ladies is trying to find out how many people there are throughout the world with these diseases.
If your interested post on here your Name and initial, country, postcode/zip code and illness. For example mine is AntiSynthetase, ILD, DM and Osteoporosis.
If you do I will forward it onto Christine and our disease can go on the map. At the moment there are only about 7 listed with our diseases.
Cheers,
Lisa