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Myositis Map

Alexgirl Message
5 Apr 2014, 08:31 AM

Hi Everyone, I belong to a few closed Facebook groups primarily regarding the Myositis part of our disease and one of the ladies is trying to find out how many people there are throughout the world with these diseases. If your interested post on here your Name and initial, country, postcode/zip code and illness. For example mine is AntiSynthetase, ILD, DM and Osteoporosis. If you do I will forward it onto Christine and our disease can go on the map. At the moment there are only about 7 listed with our diseases. Cheers, Lisa
weiner66 Message
5 Apr 2014, 03:54 PM

Hi Lisa I would love to know how many of us are actually out there. Here is my info Wayne P. Calgary, Alberta, Canada T2E 0R4 Antisynthetase, ILD, PM Thanks. Wayne
csarv Message
5 Apr 2014, 06:17 PM

Hello I'm Cathy from north of Baltimore Md, USA. Zip 21084. I have ASS, DM, ILD, Antiphospholipid syndrome. Thanks !!
AmSun Message
6 Apr 2014, 05:39 AM

Hi Lisa, I'm Mary from South Dakota 57349 ... Diagnosed with ASS, ILD, Reynauds, mechanics hands Would be interested in the results as many studies are such small groups that one doesn't get the sense that they are a very accurate representative sample.
Jason1970 Message
6 Apr 2014, 05:41 AM

Hi, Jason L. Home Hill, Queensland, Australia, 4806 ASS, DM, ILD, Osteoporosis, Polyarthritis Cheers
Alexgirl Message
6 Apr 2014, 07:18 AM

Hi Guys keep it coming as I have been sending them through.
Aggie Message
6 Apr 2014, 08:13 AM

Rachel K Doreen, Melbourne, Australia 3754 Raynauds, ASS(?)
lildreamer Message
6 Apr 2014, 09:57 AM

Paul G Brisbane Queensland Australia
martha1943 Message
6 Apr 2014, 06:31 PM

Martha D ASS, ILD, Jo-1, Osteoporosis, Memphis, Tn., USA
BarbieRose66 Message
7 Apr 2014, 10:11 AM

Barb H Orange, New South Wales, Australia, 2800 ASS, ILD, Jo-1, Myositis, Reynauds
tbear73 Message
7 Apr 2014, 12:39 PM

Terry E. Richwood, OH 43344 ASS, ILD, Jo-1, Mechanic's Hands, Osteoarthritis.
Alexgirl Message
8 Apr 2014, 01:24 PM

Paul and Martha I need your postcodes/zip codes for the maps. Thanks, Lisa
lildreamer Message
8 Apr 2014, 07:40 PM

Paul Postcode: 4156
Melissak Message
8 Apr 2014, 08:36 PM

Melissa K. East Texas I have ASS, ILD, myositis, mechanics hands
Kellyb Message
9 Apr 2014, 04:54 AM

Kelly b. AS, ILD, DM, OJ subtype 97202 I think I'm already on that map as I did submit via FB a few months ago but I'm listed as "other" and not specifically AS.
Alexgirl Message
15 Apr 2014, 02:31 AM

Hi Martha D I need your zip code for the Myositis Map. Thanks Lisa
martha1943 Message
15 Apr 2014, 02:49 AM

Lisa, My zip code is 38111 Thanks for this, Martha D
martha1943 Message
15 Apr 2014, 02:49 AM

Lisa, My zip code is 38111 Thanks for this, Martha D
Melissak Message
15 Apr 2014, 03:51 AM

Melissa K here from East Texas. I replied previously but did not add my zip it is 75709.
MPdaCNA Message
15 Apr 2014, 04:38 AM

Eric 97062 ASS (ok, that's simply funny to me) Positive Jo1 Positive SSA52 Not sure what the other abbreviations are you guys are posting.
tbear73 Message
15 Apr 2014, 11:52 AM

Eric, ILD is Interstitial Lung Disease DM is Dermatomyosytis Jo-1 in our antibody that has run amuck.
Barbbe50 Message
15 Apr 2014, 02:39 PM

Barbara from Elizabethtown, Pa 17022 PL12, ASS, ILD, Raynauds, Polyomyosistis and Pulmonary Hypertension.
brandy Message
16 Apr 2014, 04:40 AM

Brandy ASS Laramie, Wyoming 82070