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I really hope this site takes off.

napjeeper Message
21 Jan 2009, 05:08 AM

I was diagnosed in 2005 with a 4-6mm herniation. After some medication fumbles by my doctors, I have it under control and do not feel that surgery is my option yet. I have a daily head-ache, that i would put on the 4-5 scale, and take OTC meds to take care of that pain, what doesn't go away I have come to deal with. I have some neuro problems like memory, and some balance issues. I am interested in other's stories. Please share.
frogkenyon Message
3 Aug 2009, 12:36 AM

Hi there. I'm 34 with no other health problems. I was diagnosed with a 4mm herniation last year. Oddly, it was an accident that it was found on an MRI for what was thought to be a mini-stroke (it wasn't, just a horrific migraine). What kills me is that several docs (including the neurosurgeon who diagnosed the Arnold-Chiari) said it would not have accounted for all of my symptoms. I have suffered from balance issues, mild memory/concentration problems, drastic changes in blood pressure from simple movement, occasional shakes, weekly migraines, neck/shoulder spasms... none life altering, but do sometimes zap my energy to take care of myself and family. Looking for others' experiences... Take care!
tempestakasha84 Message
2 Oct 2009, 05:01 AM

i just recently got diagnosed with Arnold Chiari malformation stage 2. I also have Spina bifida and hydrocephalus and have had that all my life. I'm hoping to get more information on it because not many people know what that is, including myself.