Hi Tiffany, Thank you for your reply. I was starting to think I was alone on this one. Sorry we couldn't be chatting about something a little more pleasant. I live in Boston, MA. Its been quite a journey the past few months. I didn't think a headache would lead to this. I ended up having 2 strokes in Nov. then was diagnosed.
I did a month of rituximab and am currently taking steroids. I have recovered from the strokes to I'd say 90% which is great. I did go get scans done 2 weeks ago and unfortunately there has been no improvement to the effected vessels, but I'm feeling ok and go about normal life. So my doctors and I are doing a wait and see kind of thing. Keeping a positive attitude!
How about your story? and thankyou again