Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

Parent and Caregiver Support

idealeague Message
5 Jan 2009, 12:42 AM

The International Dravet syndrome Epilepsy Action League (IDEA League) is committed to promoting awareness of Dravet syndrome and the need for early diagnosis and appropriate treatment for this catastrophic disorder. Formed by a group of parents and backed by leading medical experts, including Dr. Charlotte Dravet, the IDEA League is the only organization in the world dedicated to providing services, resources and support specifically for children with Dravet syndrome and their families. The IDEA League is committed to family and professional education, as well as supporting research towards a cure for Dravet syndrome. Our website offers private on-line support forums for families and caregivers in three languages (English, Spanish and French). Here, members can exchange information and receive advice from other families from around the world dealing with the same issues and concerns. By joining our mailing list, you will receive quarterly newsletters with the latest news, developments and research in Dravet syndrome. I invite you to visit our website to learn more at Sincerely, Mary Anne Meskis Executive Director