Hello I have a son with AHO,PHP1a,who is 17 yr.old. He is very over weight and was hoping if anyone has had any luck with how to control the appetite. He presently experiencing spinal cervical stenosis. It would be great to talk with others.

Hi :) I don't know if you will see this, but my daughters both have issues with weight. My 13 year old is morbidly obese and we have been trying for over two years to get her to lose weight. She has lost 7 lbs in the last 3 weeks because I am making her go to the gym with me and work out. We also had to restrict her diet, even when she would cry and say she was starving. She gets enough to eat, but she had stretched out her stomach over the years, so it was a matter of shrinking her stomach. Now, she doesn't overeat and she isn't stealing food anymore. She is ok with small portions too. She will never be skinny and that is ok. We are really hoping she will get down to about 130 ( she is 4'10" and 224 lbs right now) I don't know if this helps, but if you would like to talk more, just drop me a line.

I suffer from PHP type 1A since my birth and I had always difficulties with maintaining the correct weight, but I never reached an overweight of more than 11kg [25lb] above the normal weight. As I have been born with degeneration of my left hip joint, it is very important not to overload this joint. My parents explained me this issue quite early and they provided me with enough sport activity on the fresh air during my childhood. I have a two years older sister, who is healthy and I was treated like a healthy child by my environment, as nobody knew about my disability. Now my weight is 56kg [123lb] by the height of 152cm [5ft]. Please contact me, if you wish to talk with me about this issue. My e-mail address is bsandecka@wp.pl

My daughters were prescribed metformin last year due to being morbidly obese and it has been amazing. My youngest was 107 at the age of 4. She has been on metformin for about a year and is 63 lbs now. My oldest daughter was 235 when she started metformin and is now 202. I would ask your Dr about trying that