Have you moved to Georgia yet? From what I've heard it's gorgeous. You might need to get a translator at first so you can learn their language. I had to ask many times what was being said, then a co-worker gave me pages of Texas words. I know it sounds silly but boy did it help. I am especially glad to hear you have family & friends for support. With mine up north there is little they can do. I'm staying down here tho' cuz I do now have a family with people I've met. Been here 30 yrs in March. Hard to believe. My fatigue has kept me in bed more than usual so I am trying to get P.T. started. Especially 'cuz I want to take you up on that dance you offered, if we can get a group together. Anything possible, right? Take Care, I'll look forward to hear about Georgia & how you all are doing. Deb
Hi, just got back on today after not being able to for a while. I live in Denton, 'bout 30mi nw of Dallas. We are practically neighbors. Have you found a good doctor(s) that know or learns about ALD/AMN? I have a great one. He's farther than I'd like but the only one I found who knows about the Leukodystrophies. I do have to agree that I feel better in the warmer weather than the frigid climate I came from. But just like anyone else, I have to be careful about it being too hot. If I'd stayed up north, I'd have to put ski's on my chair but haven't figured out how to stop my chair without a brake. Still working on that. I didn't see much about your symptoms, what you do, etc. So if you don't mind sharing, I'm all ears, or eyes in this case. Look forward to hearing from you...and anyone else to would like to join us on this network. Where else can you talk about diseases, W/C's, therapies and whatever you want & aren't talking about a "B" movie, till then....Welcome February!