I'm with you. I have AMN, am 27, had symptoms for maybe 4-5 years. I think sharing our medications is very important because they help to control the symptoms. Sure they don't solve the problem, but in the meantime, we can heal the pain while we can on this crazy game we call life.
I take baclofen, 70 mg per day spaced out for spasticity
anti depressant to elevate my mood from the doldrums of depression
hydrocortisone and fludrocortisone for the adrenal portion.
vitamin d2 (prescription), this is a new one. I have an endocrinologist concerned about my bone health because extended use of steroids can lower you bone density.
finally I use painkillers. i won't say which, as everyone is different. suffice it to say, it helps on a day to day basis controlling the hurts and aches.
I know enough to help myself on a daily basis, but as I know there isn't a clear solution at the moment. The best we can do is live every day as happily as we can and smile and help others along the way
also I have an excellent support network: my beautiful girlfriend, parents, doctors. My cats are fun too! They're all concerned as much as I am.