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jmickael Message
24 Jul 2013, 04:13 PM

Seriously not one person has joined this community? I have hemangiopericytoma in my thoracic spine, does anyone have ANY info on this?
Brit07Benjamin Message
4 Nov 2015, 05:43 PM

I'm not sure if you still come on here, but I also had a thoracic hemangiopericytoma. I had two surgeries within a year, it was removed but I suffer a lot of deficits and have had my world turned upside down. I am tougher than I ever thought I could be and have been searching since being diagnosed with this, for someone else with this or any info and it's been really scarce. I hope you are doing okay, let me know if you would like to chat or share info anything I'm here. I am 28 years old. I start radiation possibly in a few weeks if nothing grew back, to help prevent the tumor from coming back as long as possible. I am iffy about that as I suffer brown-sequard syndrome, autonomic dysrhytmia, partial paralysis, and so many other things. Take care.