Hello Medullary Cystic Kidney Disease Community, I am the member of a research team headed by Dr. Anthony Bleyer that studies Medullary Cystic Kidney Disease (MCKD). We are located in Winston-Salem, NC as part of Wake Forest School of Medicine. If you would like to contact us with any questions about MCKD, please reply below or email us at kidney@wakehealth.edu We will answer promptly. Thank you, Kendrah Kidd Wake Forest Inherited Kidney Disease Research Team

I’m Andrew Hosking, the Founder and President of the UKD Foundation (ukdcure.org). We have established a foundation to “Promote research and education programs to discover effective treatments and a cure for Uromodulin Kidney Disease (UKD) and support affected families worldwide.” Before the cause of UKD was well understood, medical practitioners named the disease based on it's symptoms. Unfortunately, the symptoms vary across patients, and this has resulted in many names being used to describe this disease. We use Uromodulin Kidney Disease (UKD) to unify all names, which include: - Familial gout-kidney disease - Familial gouty nephropathy - Familial Juvenile Hyperuricemic Nephropathy Type 1 (FJHN1 & FJHN) - Familial Uromodulin Associated Nephropathy (FUAN) - Hyperuricemic Nephropathy - Medullary Cystic Kidney Disease Type 2 (MCKD2) - UMOD-Associated Kidney Disease (UAKD & UMAK) - UMOD-related kidney disease - Uromodulin Associated Kidney Disease (UAKD & UMAK) - Uromodulin storage disease Please check us out at http://ukdcure.org Andrew