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Hello everyone my baby suffer fraser

jaababe Message
15 Jun 2013, 03:53 AM

His old is almost 1 year. He has not received eye surgery. I would like to know, has anyone receive eye surgery is successful?
Rhyleesmom Message
15 Jun 2013, 02:55 PM

Hi there, my baby is 13 months with Fraser Syndrome. She was born just a few months before your son. She cannot have surgery on her eyes as both are fused. Living with a baby who cannot see has its struggles, but it does get easier. I wish you the best of luck.
granny Message
16 Jun 2013, 01:04 PM

Hello, my granddaughter is 10 years old and has Fraser Syndrome. She had surgery for fused eyelids and the surgery was a huge success! the surgery was done when she was almost 2yrs old. The doctors at the Kellogg Eye Institute and Ann Arbor hospital are the best for handling this type of surgery. Even though she was born with one eye and blind in the other, she is a very happy kid and is learning more everyday by leaps and bounds.
Rhyleesmom Message
16 Jun 2013, 04:57 PM

I don't mean to pry, but does your granddaughter have any vision in the eye after opening the eyelid? My daughter has good light perception, but her doctor is worried about maintaining the eyes after opening her lids as she has no tear ducts. Also, where are you from? We're from Canada. Any information is greatly appreciated.
granny Message
17 Jun 2013, 03:11 PM

I am from Flint MI,my granddaughter does have some sort of light perception in the one eye she does have.But we really don't know for sure how much.She can only comprehend a few words right now,and we are waiting for her to be able to tell use what she can actually see.She has a beautiful glass eye to fit into the empty socket and a clear conformer to fit over the one very small eye.The conformer and glass eye are in place to help her look normal and to keep the eyes from looking as though there are sinking in as you have seen with other blind individuals Did the doctor suggest some sort of eye drops to keep the eyes wet after the eye lid surgery? I had a son born with Down Syndrome who did not have tear ducts and basically he always looked as though his eyes were swollen.The doctors here suggested we go to Ann Arbor Children's hospital to speak to someone about tear duct surgery.That was many years ago,but I am sure if you contact Kellogg Eye Institute in Ann Arbor MI you may find some answers to your questions. Any more info you need,I am there for you. Granny